WHAT IS RAREi?
RAREi is an informal network of Canadian research-based bio-pharmaceutical organizations involved in developing therapeutics for rare diseases. The purpose of RAREi is to provide a forum to address common public policy issues.
Vision
To shape the Canadian health system and policy environment to facilitate patient access to diagnostics and medicines that improve the lives of Canadians with rare disorders.
Mission
RAREi is an informal network of research-based bio pharmaceutical innovators committed to monitoring, responding and shaping policy issues in the Canadian rare disease environment.
Objective
To affect positive policy change in the rare disease environment within the Canadian health care system to improve the health of Canadians with rare disorders and improve patient access to orphan medicines.
Our Goals
MONITOR
the changing rare disease environment in Canada to identify key policy issues and trends and assess their impact on stakeholders
